Live Life Grateful is page to inspire, lift you higher and remind us all to be grateful every day. Life is full of surprises, we can make lemonade out of lemons. This is a blog to support individuals living with a chronic illness. It's also a page for women, moms, fitness enthusiasts, health tips, raising teenagers, travel and more. My hope is we learn together, find strength in numbers and laugh along the way. Life is an adventure, live it!
Saturday, July 14, 2018
My Top 12 Tips For Being Married Happily Ever After
I am 90% happily married, because let's be real no one is a 100% happy in their marriage. Even if they do post a picture with a heart around it, claiming they've never fought. Not only have I been married for 25 years, I've know my husband for 30 years. We met when I was just 15 years old. We were best friends, not even dating until one day he woke up and realized I was crazy about him. By then I was 20 years old and ready for him to dump his current girlfriend and propose to me. The rest is history and we were married July 15th, 1994.
Sunday, July 8, 2018
How to Be An Adult on Social Media
Let's talk about sharing personal information. Give me eight minutes, Ill do a Ted Talk on things NOT to post. Employers, parents, and schools you are applying to, ....are all looking at your social media. Posting about your medication, fights you had and using bad language is not going to look well. If I was choosing between two candidates for a job, you bet I'd pick the one that has a stable social media. As far as medical goes, it is a personal decision when sharing info on medical conditions. Posting about medical conditions for support and education can be a great way to raise funds and awareness. It can also be very therapeutic. Just make sure you are never sharing someone else's info without their permission.
So let's be clear. Your Social Media personal page is awesome for keeping memories, staying connected to family and friends, and even opinions when done in a responsible manor. Social media for business is fantastic for generating new leads and growing your revenue.
True fact, when my daughter asks to go on a date and I don't know this person well, I look at their social media. It's amazing what teens will post. And if they have foul language, violent art, inappropriate attire, etc the answer is NO. What makes you think you will date my daughter? Teach your kids at an early age the responsibility of information sharing on social media. And yes I have access to all my kids accounts.
Women tend to create drama where there doesn't need to be any. If it wasn't for my business I'm not sure I'd be on social media at all. I've loved it for keeping track of pictures, its kind of a journal for me. I am not scrapbooker! So when pointless drama sneaks in, I just want to shake the person creating the drama and say "hey you are better than that!" We often talk about being real, lifting women up, and being a support system. Then do that!, how genuine you are matters. Not to mention you could really cause someone emotional trauma. Be kind always. Maybe I can clear up a few areas that create the drama in the first place.
You have the "Attention Seekers", the "I'm having a really bad day".... but don't tell you what is wrong. 50 people then proceed to send emojis of happy crying faces. If you had a bad day at work, say that. Getting support from others who can relate could be really helpful. Just don't be too vague about it. There's a difference between wanting the attention from everyone asking "whats wrong?" to letting friends know your day was terrible and could use some support.
You have the "perfect life" sharers....No ones life is perfect, give me something real besides your perfect vacations, relationships and over the top parenting. People want relatable, not unreachable. We try so hard not to compare, but we do it anyway. Now I do have friends that use their face book just to keep up with family memories, and then go on to make photo albums out of it. Thats a great idea. But I'm talking about the over compensating comments, with a heart around the anniversary pic and telling me you've never had a fight in 15 years.
Next comes the "opinion moderators" They want your opinion, but only if its inline with what they are preaching. Be careful you may find your comment deleted entirely. You are missing a growth opportunity if you don't look at all sides. I find myself commenting less and less on pages I know have a tendency to delete and control opinions.
The "home business multi marketers" I love supporting small businesses but be upfront about it. I've gotten personal messages asking about my family and commenting on family vacations only to end with "I have a video for you to watch, no obligation but I need 10 people." Really? I don't have time for it. If you want me to review a product, just be direct in your intentions.
And last but not least, The "offended" Yes you've been offended, maybe not even on social media but you are going to call them out publicly. I do not want to know what you ex husband said to you, the family argument word for word or that your sister slept with your husband and "haha" to them you posted it public. Airing dirty laundry on social media is never a good idea, it doesn't look good for you. And lacks maturity. You may have been truly been hurt, but no one knows the real circumstances and public shaming can really do harm.
In all these situations it is easily solved by getting back to being personable and responsible. Ask yourself what your agenda is first. Could it be solved by reaching out? Is the information too personal? Would I want a future employer, school or family to see it? Does it enrich my life, or someone else's? Is my post a hidden agenda meant for someone to read between the lines? And the last question to ask yourself, could it ever be used legally against you? My husband is an attorney, believe me your social media can be used for evidence.
As social media grows in popularity and it doesn't seem to be going away, choose wisely what your content is. It's an amazing tool for business, a remarkable way to stay in touch with family and friends, and building communication across the globe. Just keep the drama out of it.
*Its almost funny that I will have to add, these are only my opinions....
Tuesday, June 12, 2018
The New Normal
In the midst of feeling my own stress of moving, I got to spend time with my super amazing brave friend that is warrioring through cancer, give hope and extra love to a mom who struggles with her teens, teach a class to my awesome Vasa crew and laugh a lot with good friends. Today was a good day which brings me to....How I decided to have a good day:)🦋🦋🦋🦋🦋
Anyone ever listen to @thealisonshow podcast? I often do on my long drives. And she got me to thinking about my "new normal." Yes it sucks right now but this is my life. And my new normal. It's so crazy, I just have to laugh. Am I living in my moms basement with my hubby, 2 teens and a couple dogs? Heck ya I am. But I am blessed to take this little break, get our bearings back and start fresh. So instead of feeling the same way about things I cannot change, I chose to accept it for what it is and what a great day it ended up being. The pressure of fixing everything right now was gone. So on to my next and final point....
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Mental health is so important, just as important as physical health. Exercise isnt always about the weight loss, it rarely is for me these days. I do it for my mental well being. My anxiety is lower, my MS is staying under control way more often and I sleep better. Did you know 3 of my 4 teen daughters has had severe depression? It's a topic close to my heart and one I dont talk about a lot. One day, with their permission, I will tell you you their journey. But what I can say is that staying active is soooo important. Added into everything else I did for them therapy etc, I made sure they kept up with dance, cheer, choir whatever it was, it was their outlet. And I made it a top priority. I didn't make them go, but I never used their outlet as something to take away for punishment. Cell phone, car, going out with friends...absolutely. But not the one thing they could channel their anxiety to. For me, I go to the gym.
Now if you got through all this, I am grateful to you. I know it's not easy and a new normal can seem lonely. But you are not alone, we just need to speak up so others can reach out.
Thursday, May 10, 2018
The "Best Mom Ever"
Wednesday, January 3, 2018
Getting Honest With Your Food
When starting a new eating plan, get a support group. Be accountable to someone. I'm in a couple of groups. Just because I teach fitness classes doesn't mean it comes easy. I have a couple of inspiring people I follow on Instagram. They have to be motivating, real and good common sense.
Thursday, November 16, 2017
Dr Appointment Tips for Chronic Illness
I'm going to make this simple, again these are just ideas I have learned along the way. Many times I don't want to ask for assistance with my appointment either because I don't want to bother anyone or I just want to keep it private. But there are a few things that have helped make my appointments easier.
Doctor appointments with a specialist can take up half your day. If you think the appointment is going to make you tired then have someone drive you. I had one appointment take four hours and I was mentally spent. Thankfully my husband had come with me.
Having a second person there can help you remember all the info that is being thrown at you. And ask questions you may not think they even had. I forget my husband hasn't been to all the appointments and may not understand everything that is going on, so it can be a great opportunity for family to get clarity as well.
It may sound silly, but take water and a snack. It is no fun to get stuck in an appointment longer than you expected.
I take notes. I have a google doc I have kept track of all my symptoms, relapses, medication changes, tests and any changes to my health. I know my memory is bad so it good to have a something I can easily pull up on my phone when my Dr is asking me about my previous health history. I make sure to take a list of questions in as well as a list of any current symptoms. You can take notes during your appointment, but if that isn't convenient, I write everything down as soon as I leave my appointment
Ask questions. If something isn't quite making sense, it is your appointment and your health. Don't leave until you are satisfied with the visit. If you make an appointment before you leave, add it immediately to the calendar on your phone. I lose that little business card every time!
If you have any suggestions or questions, please leave a comment.
Wednesday, November 8, 2017
Chronic Illness-Ideas For Supporting The Ones We Love
In the beginning you are given an overwhelming amount of info. You barely get whats happening, let alone your loved ones. I remember coming home that first day from my Dr's office after confirming it was MS. I had just a few hours before I would be hooked up to IV's for a strong dose of steroids and I was still unclear on what multiple sclerosis even was. All I heard was blah blah blah...something is wrong with your brain...blah blah blah....no cure....blah blah blah....it can get worse! Oh my gosh we were all in shock. I thought maybe had early menopause, maybe a sinus infection, but no such luck, I have something wrong with my BRAIN! My family gathered round like I was going to die. Phone calls were made, prayers said, and tears shed. I didn't know who to call, or where to even begin and wondered what was my life going to be now. It seemed like overnight that my future was not going to be the future I had planned.
Tip #1, It's Gonna Be OK. Don't act like they are deaths bed or tell them stories about the latest story you heard of someone that died from an illness like yours. I was once asked "how do even get out of bed in the morning? Isn't it just so depressing?" Umm no, I still look forward to my day, it may not be what it used to look like, but I happily get out of bed. Chronic illness makes life more difficult, but not impossible. It can lead to complications but most of us live a long life. So that's what I'm planning on.
Tip #2, Ask questions. I love it when people ask me questions about MS, education is the best way to get the word out. In 2015 I was on a panel of Mothers With Chronic Illnesses. Included mothers with Fibromyalgia, Chronic Pain, and Chronic Back Pain. I was stunned to learn all that they go through on a daily basis. I learned so much from each of them and how they cope. There are websites for everything, I encourage you to seek them out. You will find info on symptoms, causes, drug therapies, and support groups.
Tip #3 Do not send the latest and greatest cure. Chances are we have gotten the emails, and seen all the social media posts etc. If you insist, do some research first. Not all articles are current or factual. My MS was not caused by drinking Diet Coke, a tick, or even lack of sunlight. Although I would like to use it as my reason for having to live on the beach someday. Rubbing on a $50 bottle of a plant oil may help me sleep better but it can't replace the drug therapies my doctors have prescribed me. And that cure they are doing over in Europe, there are reasons we aren't doing it in the US. I do love emails and texts that simply say "thinking of you, have a great day." PS I'm drinking my Coke Zero as I type.
Tip #4 Communication! I realize what a struggle it is to "know" what a person with a C.I. even needs. So I suggest some preemptive actions. Get a list of what your loved one could use help with on a "bad day". Have medical info on the fridge with Dr phone numbers etc. My kids know after my weekly shot, I'm sick for a day. My 13 year old is often on soup duty, my 16 yr old makes sure I have medications and my husband checks in on me now and then. In the beginning it didn't run that smooth. No one was checking on me, I was too sick to move and often angry that no one even cared! I would sob in the dark, under my electric blanket. Sad picture right? Then I realized I hadn't communicated what I was going through and what I needed. After a family meeting and a few lists, we got it down. Communication is key.
Tip #5 There will be times they don't want help. That's ok. It's hard to lose any amount of independence and adjust to limitations. It takes time to figure out where you need to ask for help and what you can still manage on your own. I often need someone to drive, but how I hate it! It has been one of the hardest things to get used to. So if they don't want help, its ok to back off. Do what you can to make their lives easier. Just letting them know you are there is comforting.
Tip #6 Find Support. Chronic Illness can be very lonely for spouses and for the individual. Maybe even more so for the spouse. They can't actually feel what it's like, they can't cure it and can feel left out of the process. It is easy to fall into the trap of doing it all on your own. There are support groups out there. Even if its just a phone call. I recently went to lunch with a lady that had been newly diagnosed because a friend had given her my name (with permission). One of the first things I did after being diagnosed was get my puppy. Not everyone is a dog person, but pets can bring emotional support. I didn't want to be alone. After 5 years my little Yorkie has learned when I'm not feeling well. If I'm too cold, he can sense it and curl up on my lap to warm me up.
Tip #7 Humor is good. It's good to laugh about the craziness of it all. I have issues with memory. Did I really just forget my dogs name? Poor thing. Ever seen 50 First Dates?, some days it feels just like that. One night I asked one of my kids to say family prayer, only to find out they just did. I have learned to laugh and let it go. Hope somebody prayed for my memory. :) Which brings me to my next tip.
Tip #8 Stay positive. I know some days that seems so hard! Its true, watch what you say. Making comments like "you already said that" or "I already told you..., don't you remember?" Control that urge to be frustrated out loud. Just make sure comments don't shame or guilt them. Some sleep a lot and it can't be helped. Statements of how long they've been in bed will only add to the guilt they already feel for not having the energy to get it all done. On the flip side-Relapses and bad days can put a strain on any relationship. Be kind to the person that is trying to support you. They are doing the best they can in circumstances that are often unpredictable.
Tip #9 Give yourself permission to not do it all. Chronic Illness or not, this is a good habit to form. It took me a long time to not have mom guilt and go through that evil list in my head that runs through everything I should have done. Now I make a list of what I did do.
Tip #10 Fill this one in by commenting below.
I hope you will add your comments, make more suggestions and reach out. Not everyone's experience is the same.





